ABOUT RALLY

 

YOUTH RALLY MISSION: To provide an environment for adolescents living with conditions of the bowel and bladder that encourages self-confidence and independent living.

More than 30 years after inception, the Youth Rally remains a community for young people to meet others who live with similar medical conditions.  Lasting friendships are formed, in a short 5 nights, in an atmosphere that promotes self-confidence and independence. Our campers and counselors alike live with an array of conditions affecting their bowel and/or bladder systems, some of which include:

  • Familial adenomatous polyposis
  • Ulcerative colitis
  • Neuronal intestinal dysplasia
  • Necrotizing enterocolitis
  • Renal agenesis
  • Short gut/bowel syndrome
  • Hallow visceral myopathy
  • Hirschsprung’s disease
  • Cancer
  • Bladder exstrophy
  • Cloacal exstrophy
  • Spina bifida
  • VATER Syndrome
  • Imperforate anus
  • Crohn’s Disease
  • Bowel exstrophy
  • Hypospadias
  • Epispadias

Just like Youth Rally camper and volunteer diagnoses vary, so do their management techniques. Some campers and volunteers are able to manage their condition(s) without medical/surgical intervention. The following is an example of some of the additional management methods shared by campers and counselors:

  • Koch pouch
  • J-pouch
  • IV medication
  • Continuous tube feeding
  • Ileostomy
  • Colostomy
  • Dialysis
  • Bowel management programs
  • BCIR (Barnett Continent Intestinal Reservoir)
  • Intermittent catheterization
  • Urostomy
  • Ace Malone
  • Pull-thru
  • Mitrofanoff
  • Total parenteral nutrition (TPN)
  • Enemas
  • Indwelling catheter
  • Irrigation

In addition to recreational programming, the Youth Rally provides educational sessions addressing topics that are common among all adolescents as well as those unique to individuals living with medical and/or physical challenges:

  • Motivational sessions
  • Living independently – going to college
  • Body image and personal Hygiene
  • Medical diagnosis groups
  • Peer discussion groups
  • Diversion/procedure-specific groups
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HOW MUCH DOES IT COST??

There are two costs associated with Youth Rally Participation:

  1. Registration.  Registration cost for all participants (including our volunteers) is $425.  We ask for $75 upfront with your application to hold your spot, but also to help us with early costs associated with planning such a grand event.  Registration costs cover all room/board, meals, activities, and transportation throughout the week.  The Youth Rally encourages individual fundraising and sponsorship is available for ALL campers who need it!
  2. Travel.  This refers to the cost it takes to get the participant to our location each year – that varies for everyone!  Again, the Youth Rally encourages individual fundraising and sponsorship is available for ALL campers who need it!

CLICK HERE TO SPONSOR A PARTICIPANT