The Youth Rally

Each year, the Youth Rally hosts kids and teens living with conditions of the bowel and bladder at a college campus for a 5-night one of a kind camp experience that promotes independence, self-esteem, learning, friendship, and FUN!

To provide an environment for adolescents living with conditions of the bowel and bladder that encourages self-confidence and independent living.

More than 30 years after inception, the Youth Rally remains a community for young people to meet others who live with similar medical conditions.  Lasting friendships are formed, in a short 5 nights, in an atmosphere that promotes self-confidence and independence. Our campers and counselors alike live with an array of conditions affecting their bowel and/or bladder systems, some of which include:

  • Familial adenomatous polyposis
  • Ulcerative colitis
  • Neuronal intestinal dysplasia
  • Necrotizing enterocolitis
  • Renal agenesis
  • Short gut/bowel syndrome
  • Hallow visceral myopathy
  • Hirschsprung's disease
  • Cancer
  • Bladder exstrophy
  • Cloacal exstrophy
  • Spina bifida
  • VATER Syndrome
  • Imperforate anus
  • Crohn's Disease
  • Bowel exstrophy
  • Hypospadias
  • Epispadias

Just like Youth Rally camper and volunteer diagnoses vary, so do their management techniques. Some campers and volunteers are able to manage their condition(s) without medical/surgical intervention. The following is an example of some of the additional management methods shared by campers and counselors:

  • Koch pouch
  • J-pouch
  • IV medication
  • Continuous tube feeding
  • Ileostomy
  • Colostomy
  • Dialysis
  • Bowel management programs
  • BCIR (Barnett Continent Intestinal Reservoir)
  • Intermittent catheterization
  • Urostomy
  • Ace Malone
  • Pull-thru
  • Mitrofanoff
  • Total parenteral nutrition (TPN)
  • Enemas
  • Indwelling catheter
  • Irrigation

In addition to recreational programming, the Youth Rally provides educational sessions addressing topics that are common among all adolescents as well as those unique to individuals living with medical and/or physical challenges:

  • Motivational sessions
  • Living independently - going to college
  • Body image and personal Hygiene
  • Medical diagnosis groups
  • Peer discussion groups
  • Diversion/procedure-specific groups
camper/counselor